Patient Charter

 

This tool has been developed with the Stop TB Patient Charter for Tuberculosis Care foremost in mind. We would like to highlight a few specific areas most relevant to the development of this tool:

Patient’s Rights

Application

Care

The right to receive medical advice and treatment that fully meets the new International Standards for TB care… Adoption of the HL7 global data standard for electronic health and medical records as our baseline communications and data formatting standard.

Information

The right to receive a timely, concise and clear description of the medical condition, with diagnosis, prognosis and treatment proposed, with communication of common risks and appropriate alternatives. Real-time notification system (email or SMS) to government officials and/or facility managers who can allocate the appropriate drug or treatment regime, based on the diagnosis rendered by the GeneXpert.
The right to know the names and dosages of any medications or interventions to be prescribed, its normal actions and potential side-effects and its possible impact on other conditions or treatments. Listing of the relevant information on this website. Potential for inclusion of this information in the real-time notification system.
The right of access to medical information relating to the patient’s condition and treatment and to a copy of the medical records if requested by the patient or a person authorized by the patient. Connecting the GeneXpert data into a host nation’s Monitoring & Evaluation (M&E) or Laboratory Information System (LIS) through an open API so existing tools are fed better quality, patient-level data.

Confidence

The right to confidentiality relating to the medical condition, with information released to other authorities contingent upon the patient’s consent. Data is stored in a global, FISMA-Moderate, HIPAA-compliant secure data center. Programs and nations can relocate hosting in-country or “off network” if desired.

Data is encrypted “at rest” and “during transmission” via the open API

 

 

Patient’s Responsibilities

Application

Solidarity

The moral responsibility to share information and knowledge gained during treatment, and to share their expertise with others in the community, making empowerment contagious. Enabling government officials, health workers, and drug logisticians to know where MDR-TB cases exist, in order to better allocate second-line treatments.

Enabling GeneXpert manufacturers to better forecast demand and consumption of cartridges in order to reduce spoilage, lower production costs, and reduce funding gaps.

Enabling the research community to better track, analyze, and recommend solutions for combatting MDR-TB.